After battling the doctors for a good three or four months now, today was the day I finally won and was written the prescription for at home oxygen! I had an appointment today to get a machine for my at home sleep study that I have to do tonight, to see if my oxygen saturation drop when I sleep. I have a sneaking suspicion that they do, but we'll see. It has only taken them months and months to run this freaking test. But while I was at my appointment, I mentioned to the lady that when I do something active such as taking a shower, getting ready for the day or going shopping, I become really short of breath really easily, therefore making it hard for me to do stuff. So she decided to walk me up and down the hall and a set of stairs to see if my O2 dropped. And after walking about 500 feet not even making it to the stairs, it dropped to what I like to call my magic number of 88%. Anything under 89% qualifies you for oxygen. I was so happy/relieved when she said "You just got yourself oxygen!" It's a very bitter sweet thing. Bitter because it's a realization that I'm officially sick enough to where I need oxygen. But sweet because I'm gonna be able to function better and I'll be able walk the mall again. Something I haven't been able to do in about six months or so. I'm so excited!!!!! The little things in life that people take for granted.
Top picture: The thing I have to sleep with on my finger.
Bottom picture: The machine it's connected to.
All the oxygen tanks I was given today..So many of them!!!
Left picture: My main oxygen machine, I use at home.
Right picture: Me after they set up my machine. It feels amazing to breathe a little better! <3
I'll get my results back from my over night study most likely on friday. When I do, I will be posting again. Since I am officially on oxygen now, I may be moving up on the transplant list. I'm not 100% sure yet if this will have any affect on my score (where I'm placed on the list). It's all gonna depend on my results. All I know for sure is that it's gonna make traveling a little bit harder. Also, I am still selling my "Just Breathe" "Amanda" bracelets to help raise money for my transplant. All the money goes to expenses my family and I are going to have. Especially plane tickets to get my family down to california ASAP after I get my call. If you are interested in buying one or however many you want, please feel free to comment on this post or send my a message on my facebook (the link to my facebook is on the right hand side of my blog).
The bracelets I'm selling!!!! $3 dollars each :)
Prayers and good thoughts are always welcome and appreciated ! Also, please pray for not only me, but for my cyster Mikayla, who just received her transplant on Monday <3