Tuesday, May 7, 2013

It's been awhile!


    I know I haven't blogged in awhile so I thought I would write a little update about whats been going on! As most of you know from my previous blog posts I had my first fundraiser earlier this week (on monday). It was cut-a-thon/raffle at my aunts hair salon (Strut Salon). And I'm happy to say it was a big success!!!!! Koin 6 news even came to cover the excitement! If you wanna see the news casting click here - https://www.facebook.com/photo.php?v=623916517637027   For the raffle we had received donations from a bunch of big businesses and some from small local ones as well. On top of all the hair cutting that was going on, one of the hair stylist also was doing face paintings! We also had two wonderful guys from Mack's Finer Foods, who sold "The Pappy Dog" aka the most delicious hot dogs ever!!!! And that's a lot coming from me because I'm not typically a big hot dog fan. Along with the hot dogs, there was a lady that set up a little table and was selling chocolate covered strawberries, cookies, and stuff to make mimosas! All of which were delicious! I can't begin to thank EVERYONE who had any type of involvement with this event. From donating, putting it all together, helping out, cutting hair, serving food, or just stopping by to say hi to show your support. THANK YOU!!!! It means more to me than anyone will ever know, I'm truly blessed to have so many wonderful people in my life that love, care and support me! And I am proud to say we raised $2,000!!!!!

The table full of the raffle prizes!
Hot Dogs!!!!
Mimosas, Chocolate Covered Strawberries and Cookies!

 Face paintings that were done :) so much fun!

Katrina, she curled my hair that day!! 

All of the wonderful hair stylist and barbers that participated that day :)

    The day after my fundraiser I was put in the hospital (tuesday april 30th). I probably should have went in about a week earlier but I wanted to hold out because I didn't wanna miss my fundraiser. So I held out until the day after! When I got admitted my PFTs were at 21% and I was down a few pounds, my normal sickness issues. The first day in the hospital was a pain the ass, as it always is. I didn't get my port accessed until 1 a.m. due to lack of communication on the staffs part. It was very frustrating! But other than that one little thing, my hospital stay was a rather pleasant one! On my third day in the hospital I redid my PFTs because Stanford needed them before I go down for my appointment on May 15th. And they had came back up to 27%!!!! Which is great!!! After being in the hospital a week, I was released today on home IVs that I will be on until Monday. I'm happy to be out of the hospital and able to enjoy this amazingly sunny weather we have been having here! I love the sun!!!! In the meantime my mom and I are preparing for our upcoming trip to Stanford. We're going down for a followup appointment. Every three months or so I have to have one. So we leave on May 14, my appointment is May 15th, my mom leaves on the 16th, but I get to stay and play until the 21st!!!! I am SOOOO excited that I get to stay and spend some one-on-one quality best friend time with Melissa!!!!! I miss her so much!! It's been far to long since we've seen each other on good circumstances. So it should be a great trip :)

Becca wanted to paint my toes! I'm one spoiled patient <3

   One last thing, seeing as how it is May, which means CF awareness month. Please share the link to my blog, wear purple, or donate to the Cystic Fibrosis Foundation or to me and my family for my transplant. Anything and everything helps!! We are in the process of planning more fundraisers and when we have definite plans, I will post the details for anyone who would like to join!

How CF happens!

How to donate to me and my family!
 1. You can go to and US Bank and make a deposit into my Real Heroes Become Angels bank account.
 2. Donate through paypal! Copy and post the link below :)

Thank you all for your love, care, and support! Prayers and good thoughts are always welcome and very much appreciated. <3

- Amanda :)

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