The first day in the hospital is always the busiest. The first day is the day everyone decides that your room is only open to come in if someone else is already in there. Therefore, everyone come in at the same time. Needless to say, I'm very good at multitasking. Lol. I got at around 2:30 today and I still have not had any meds. Just finished getting my port accessed. I'm not the biggest fan of the nurse I have tonight, but we'll just hope for the best. From the looks of it I'm in for a long night. Talked to one of my doctors a little bit ago and he said right now the plan is just IV antibiotics. And some good lung therapy to get the junk out of my lungs, pretty much the same as always. I don't know exactly how long I'll be here, but I will be on IV for at least two weeks. I got to chat with one of my doctors about what the next step in the transplant process is and he said that he put in a bunch of orders for labs (blood draws, urine test, and whatever else they can take from me). He also has ordered a CT scan of basically my entire body. A ultrasound of my heart, I have to meet with a heart specialist. And when I'm no longer sick, they have to do a test where they go into one of the veins in my neck and go down to test the pressures around my heart to make sure everything there is fine. But that has to wait tell I'm not in the hospital. My mom also asked him when we should expect to start going down to California to meet my doctors/surgeons. He said our trips to California will start by at the latest mid January. So I should be on the transplant list by at the latest beginning of February. So much to take in.. I'm still trying to process it myself. Its scary and exciting all at the same time. I'm excited to be able to look forward to the day I can take a breath without hurting, and to be able to walk without coughing up a lung and needing to sit down and catch my breath. But then again I'm scared because its a HUGE surgery to have. And it comes with a lot of responsibility. Another thing I have to do for the transplant is see a social worker. They have to do an evaluation to see if I'm in a good frame of mind, to see if I have a good support system (which I do)!! Earlier my mom and I got to talk to the social worker a little bit, so she could start her evaluation and what not. She didn't have time to finish today, so she has to come back again tomorrow.
My ball and chain for the next two weeks...
This time around in the hospital I am not alone in the CF friend department. I will be spending most of my time up here with Addie!!!! Yay!!! I'm happy I get to see her but sad because I have to see her here.. But in the hospital is where I've met lots of my CF friends! I'm happy that I won't be as lonely this time around as I thought I would be this hospital stay. It's weird not having him here to hold my hand and to tell me everything will be okay, while making me smile all at the same time... My aunt Rose and uncle Brian came up to visit earlier and I got to see two of their new little puppies!!! They are SOOOO incredibly cute, I want one so badly!
Good thoughts and prayers are always welcome and appreciated!! <3
- Amanda :)