Well today was day two in the hospital, and so far so good!! I surprisingly got pretty good sleep last night. Which isn't typical for being in a hospital. But it was nice :) I've been waiting literally all day to see someone from the IV team because the bandage the lady put on yesterday, is basically falling off and I need a new one put on.. But I've yet to see anyone... I also talked to the doctor today and of course, even though I'm doing everything I'm suppose to be doing, it's still not good enough. I just recently switched my night feeds formula to something different because my stomach just couldn't handle it. Every time I would do my night feeds, I would wake up nauseous, I wouldn't want to eat the entire next day, and my stomach kept emptying itself out. Therefore, I didn't want to do it and I was losing weight. So after three years of complaining they finally changed it about a week and a half ago. I do two cans a night, every single night, and I haven't gained back any weight yet. Well when you're sick, do you put on weight? No, you lose it. So I got an ear full from my doctor today about me not gaining weight. It's not like I choose to lose weight. I get so fed up with this particular doctor constantly telling me what I'm NOT doing. It's really discouraging. He ordered a CT scan of my entire body to check for cancer, to see if my liver is okay, and basically to look for anything abnormal. I completed that and we'll know what it shows or didn't show by tomorrow!! Fingers crossed!! In order for them to look at my insides I had to drink this gross contrast shit. Well I am now having bad stomach problems. Like I don't want to move or put anything in my stomach because it hurts so badly. The thing I hate about getting test done, is not the actual test itself, but it's waiting for someone to come get me and take me back to my room. After my CT scan I had to wait a good 20 minutes before someone came to get me. I was half tempted to walk back up my room myself. But I know that they frown upon that and that my lungs would probably hate me if I did. So i just sat and waited patiently! While waiting patiently I started to read some of my papers that they send you down with and on the paper I noticed that it says "Precautions: Family at bedside." And I just thought that was the funniest thing. Because we always tease my mom about all the staff warning each other about how overprotective my mom can be. And that she asks a lot of questions!! (picture below). The social worker that came in to talk to my mom and I yesterday, came back in today to finish up her evaluation. She was here for about two hours talking to us and asking us a bunch of questions. When she was finished up with all her questions I asked her as she was leaving, in kind of a joking manner if we "passed." And she didn't really answer and left. Now, the reason I had to have someone evaluate me and my family is to make sure that I am in the right frame of mind. And to see if I have a solid support system, which I do. It was a very much so make or break thing. Well a little bit ago, my phone rings and I answer it and it's the social worker. She called to tell me that she told the doctor in her evaluation that she thinks I'm a good candidate to receive a transplant!!!! And so to answer my question, YES I PASSED the test!!!! :) It was quite possibly the best thing I've heard in my entire life. I almost cried!!
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On another good note, I got to see my friend Jessica and her cute little baby boy Liam (picture below)!!!! He's absolutely darling. I love him!!!! I didn't want to let him go! It was so nice to finally be able to meet him and of course to see Jess. I love it when people come up to visit me, it reminds me that I do have people that care for me. It means the world to me :) I don't have any visitors planned to come up tomorrow so if you would like to come visit, please do!! I also got to see Addie for a little bit today. And I got to meet her cute mama as well!! It's nice to know and to be able to talk to people that have been through the whole transplant process. It makes it a little less intimidating!
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Cute baby Liam <3
I will post again tomorrow! I have a feeling I might post again in a little bit because my nurse is kind of ignoring me, but we'll see.. lol Prayers and good thoughts are always welcome and appreciated <3
- Amanda :)
Keeping you in my thoughts hun, I know how tough it is to gain weight.. took me about 6 months to get back to where I should be when I lost a lot last year! Nothing worse than people nagging you, it's not our fault! But you will get there and gain some, it's all about little snacks often, even if you're not hungry.. a small thing is so much easier than a big meal! xx
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